I can’t believe my third week in Roatan is coming to a close! When I first arrived a month felt like such a long time, but I now realize that a month isn’t nearly long enough to really make any lasting improvements in the quality of life of the people on the island.
This past week was a little more hectic in the clinic with the arrival of the two new pediatric residents, Dr. Sydney Leibel and Dr. Sandra Lawrynowicz. Given that I spent much of Tuesday and Wednesday orienting the residents to the workings of the clinic, showing them around Coxen Hole, and doing quite a lot of interpreting, I really saw how important the intern’s job is in preserving the quality and continuity of care for patients that visit our clinic.
While there were numerous interesting patients in the clinic this week, one in particular stands out to me because it shows how difficult it can be for people on the island to get the healthcare they need. This patient was a spunky young boy of about 4 years old who more than anything wanted me to take a picture of him J. He had been diagnosed with a seizure disorder several years earlier and had been sent to La Ceiba to see a neurologist who after several tests prescribed the boy Phenobarbital. Unfortunately, in August of this year the mother ran out of the medication and had visited the Global Healing clinic to refill the prescription. Doctora Prado gave the mother a month’s supply of Phenobarbital as well as a referral to see the neurologist in Ceiba to properly manage the boy’s seizure condition throughout childhood and adolescence.
However, as is often the case with many of our patients, the mother was back in the clinic a month later asking again for another refill prescription. Now, if you are at all familiar with anti-epileptics you know that these medications are pretty nasty, and few physicians other than neurologists feel comfortable prescribing them, particularly third year pediatric residents. Therefore, I sat down with the mother and asked her why she had not gone to La Ceiba to see the neurologist as Doctora Prado had instructed? She told me that she had gone to see the neurologist and they had already done all the tests. At this, I was confused, which is when I realized that the mother was referring to the original appointment the boy had with the neurologist over a year ago. The poor woman had not understood that the referral was for a follow-up. I gently explained to the mother that her sons seizure disorder was complex in that just as he might outgrow his clothes, it is also possible that he can outgrow his medication dose, or the type of medication he would need to take. I explained that he would probably need yearly follow-ups with his neurologist until the problem was resolved. It might even be the case that he wouldn’t need to take the medication at all!
At this news, the mother became quiet and worried. This was probably the first time anyone had really explained to her the reality of her son’s problem, and the importance of properly managing his anti-epileptics. After all was said and done, we asked the women if she was going to be able to take her son to La Ceiba, to which she shrugged her shoulders. As is the case with many of our patients at the clinic, she could not afford a trip to La Ceiba but was too ashamed and proud to admit it. Thankfully, we were able to offer the women and her son free transport to and from La Ceiba. The mother and her son left the clinic completely grateful for all the education and help we had offered them. “Que Dios le bendiga” she said, which means “May God bless you”.
My interactions with this family showed me the importance of patient education. It is so important to make sure that your patient understands their problems, why they have them, how to avoid them, and how to treat them. All this mother knew was that the Phenobarbital helped her son, but she hadn’t the slightest idea that poorly managed seizure disorders could result in developmental delay, or how anti-epileptics affect cognition. While all this information may have surprised her, and even scared her a little, I am confident she left our clinic with an increased understanding of her son’s problem, and perhaps with increased confidence in her ability to help him.
